I noticed I haven't posted anything to this blog in a week. And no news is good news.
Dad continues his recovery process. Being the impatient person that he is, it's not going fast enough for him... but he's doing very well. Every day he feels a little bit stronger, walks a little more, does a few more things. He's adapted well to his new plumbing routine.
While I've always considered us to be a pretty positive family, this has really renewed our outlooks in terms of what's important and what's not. Life changing events have the tendency to do that, I suppose. I'm thankful for every day that I can pick up the phone and give Dad a call and hear how he's doing. Mom and Dad have settled back into a routine that includes working, entertaining, and just plain relaxing.
So, that said, as we return to the minutia of everyday life...this will be the last post on this blog. I cannot even begin to put into typed-out characters how appreciative we are for all the support and love we knew was always there, but shines as a bright lighthouse during our stormy voyage through July and August. I couldn't possibly list out everyone to thank here, because there have been so many people. But if you're reading this -- please know that you're considered a part of our family, and I hope that we will be there for you if you ever need it.
With sincere love and gratitude,
The Gladfelters
Chuck, Nancy, Todd, Darin, Harley, Tico, Jacques, and Benny
Monday, September 10, 2007
Tuesday, September 4, 2007
Labor Day
Wasn't it great to have a 3 day weekend? (Apologies and kudos to those who actually have to work holidays...I had to for may years). But man, it was awesome. 24 extra hours without having to go to the workspace or get on plane was pretty nice after the August we all had.
Then, smack...it's Tuesday, and everyone goes back to work. Today -- everyone includes Dad. He got to get in his own car today, go get a haircut, and go into work for a little while. With everything, there's still the weakness and the tiredness that comes along with his recovery. But it sure as hell is a good a start. And when Mom said he got concerned over the normal things that concern him in the store, that was also really good to hear. It means thoughts are shifting away from medical things and over to normal, everyday, stuff-ya-gotta-deal-with things.
Hope your day at work was reason to celebrate too...even though I'm banking it isn't ;-)
Then, smack...it's Tuesday, and everyone goes back to work. Today -- everyone includes Dad. He got to get in his own car today, go get a haircut, and go into work for a little while. With everything, there's still the weakness and the tiredness that comes along with his recovery. But it sure as hell is a good a start. And when Mom said he got concerned over the normal things that concern him in the store, that was also really good to hear. It means thoughts are shifting away from medical things and over to normal, everyday, stuff-ya-gotta-deal-with things.
Hope your day at work was reason to celebrate too...even though I'm banking it isn't ;-)
Saturday, September 1, 2007
Eh
It was a UTI. Isn't there some irony in that? Or coincidence? Or something?
Dad is still feelin' kinda punked out but the fever is down and he said he's movin' around a little bit today. So hopefully some more rest and he'll be gettin' to gettin' better!
Yeesh!
Dad is still feelin' kinda punked out but the fever is down and he said he's movin' around a little bit today. So hopefully some more rest and he'll be gettin' to gettin' better!
Yeesh!
Friday, August 31, 2007
Round the curve, blow a tire
It was supposed to be get home, feel energized, get better even faster....not get home, feel like you got hit by a truck, and then have to deal with being SICK again. Dad got some kind of infection though, and on his full first day home yesterday -- he has a 102 fever and the chills and crap that go along with that. Nasty. Docs think it's possibly a urinary tract infection, which can be common after major surgeries like his. So it's more samples, more doctors, more Cipro, more of everything that we're all entirely ready to be rid of!
This morning, he is feelin' a little better. Fever is down some and hopefully the Cipro is doing its Cipro thing.
Note to mapmakers: We'd really appreciate it if you'd note the potholes on our roadmap to gettin' better. That is all.
This morning, he is feelin' a little better. Fever is down some and hopefully the Cipro is doing its Cipro thing.
Note to mapmakers: We'd really appreciate it if you'd note the potholes on our roadmap to gettin' better. That is all.
Thursday, August 30, 2007
Home
After a long 10 hour ride in the car yesterday, Dad is home. He was really tired -- had some dinner and then crashed in his own bed.
Talked to him this morning and he mentioned that he was still extremely tired, probably from having to get up every 2 hours to drain. This will be necessary for the first week as he gets used to using the internal pouch. After that, it will be getting up every 3 hours for the next week...then 4...until it's just once during the middle of the night.
Over the next couple of days, he'll probably still be in serious recouperation mode...but at least he's going it in his own space, with his wife instead of a nurse, and Harley instead of a 'random therapy dog'.
We're all in the geographic places we're supposed to be right now...and that's a good feeling for a change!
Talked to him this morning and he mentioned that he was still extremely tired, probably from having to get up every 2 hours to drain. This will be necessary for the first week as he gets used to using the internal pouch. After that, it will be getting up every 3 hours for the next week...then 4...until it's just once during the middle of the night.
Over the next couple of days, he'll probably still be in serious recouperation mode...but at least he's going it in his own space, with his wife instead of a nurse, and Harley instead of a 'random therapy dog'.
We're all in the geographic places we're supposed to be right now...and that's a good feeling for a change!
Tuesday, August 28, 2007
...And All Is Right with the World
It's hard to believe that it's already 3:15, but I guess that when you have a busy day of appointments and meetings with various people in various places at the Cleveland Clinic, time just flies. Here's a re-cap: At roughly 10:15, Dad and I were sitting in the hotel room, constantly telling the maids knocking on the door that we weren't checking out until tomorrow, and watching the local news program that follows The Today Show. We didn't speak until we watched a segment in which two 45-55 year-old broads (with catcher's mitt faces) started to play (or at least tried) their version of Delta Blues (they were called the Delta Swamp Girls or something, and I don't recommend that you ever see them live...or via recording...in fact, just forget you ever heard their name). At that time we simply looked at each other with a "let's go" face and left for appointment #1.
We arrived at the Radiology department in the basement of the H building about a half-hour early. Nevertheless, Dad was quickly led away by a friendly nurse (I must say that there was very little waiting time once we arrived for any of our appointments...kudos to you and your punctuality, Cleveland Clinic) so that they could take some x-rays to see if his Indiana Pouch was a-okay...MISSION: Accomplished. From there it was up to the International Cafe for a spot of lunch and then to appointment #2, where the surgery staples were finally removed, and the now legendary Dr. Fergany came by to make sure everything was tip-top...MISSION: Accomplished. Finally, we went in for the last appointment of the day and were reunited with The Stomettes (that's our name for the Stoma nurses who attended to Dad; with their matching outfits and their almost choreographed in-sync movements, it's like they're some kind of 60's girl-group) who instructed Dad on how to use and care for his Indiana Pouch...MISSION: Accomplished.
We're now back at the hotel and Dad's getting some rest. He had a big day today and it looks like that his tenure at the Cleveland Clinic is done (of course he'll likely come back here for a routine check up in about 6 months, but compared to the current stay he's had, that oughtta be a walk in the park). In a while he'll wake up and probably start to pack some of his things. Later on tonight, his baby brother Tommy will arrive and I'll head back to Chicago. Tomorrow morning, it's likely that Dad and Tommy will wake up early, bid a fond farewell to the Cleveland Clinic and start the drive back to South Carolina. I'd say that around 6:00 or 7:00 PM, Dad will be home and back with Mom as this Cleveland-centric chapter of our family's story comes to a close...and all will be right with the world.
-DG-
We arrived at the Radiology department in the basement of the H building about a half-hour early. Nevertheless, Dad was quickly led away by a friendly nurse (I must say that there was very little waiting time once we arrived for any of our appointments...kudos to you and your punctuality, Cleveland Clinic) so that they could take some x-rays to see if his Indiana Pouch was a-okay...MISSION: Accomplished. From there it was up to the International Cafe for a spot of lunch and then to appointment #2, where the surgery staples were finally removed, and the now legendary Dr. Fergany came by to make sure everything was tip-top...MISSION: Accomplished. Finally, we went in for the last appointment of the day and were reunited with The Stomettes (that's our name for the Stoma nurses who attended to Dad; with their matching outfits and their almost choreographed in-sync movements, it's like they're some kind of 60's girl-group) who instructed Dad on how to use and care for his Indiana Pouch...MISSION: Accomplished.
We're now back at the hotel and Dad's getting some rest. He had a big day today and it looks like that his tenure at the Cleveland Clinic is done (of course he'll likely come back here for a routine check up in about 6 months, but compared to the current stay he's had, that oughtta be a walk in the park). In a while he'll wake up and probably start to pack some of his things. Later on tonight, his baby brother Tommy will arrive and I'll head back to Chicago. Tomorrow morning, it's likely that Dad and Tommy will wake up early, bid a fond farewell to the Cleveland Clinic and start the drive back to South Carolina. I'd say that around 6:00 or 7:00 PM, Dad will be home and back with Mom as this Cleveland-centric chapter of our family's story comes to a close...and all will be right with the world.
-DG-
Boozin' It Up
Dad and Darin split a bottle of wine tonight at dinner. I heard there may have also been a mojito consumed. Lindsay Lohan would be proud.
Drinking is a good thing. Alcohol and chemo don't mix. And because I am a scientist (my college told me so), I can deduce through reasoning that there will be no chemo for Dad. That, and he told me that's what the doctor told him.
So tomorrow, it's the switchover to the surgically-created Indiana Pouch, which means sheddin' the 'clear purse'.
And Wednesday, a cancer-free drive home with Uncle Tom to Greenville.
Cheers (clink).
Drinking is a good thing. Alcohol and chemo don't mix. And because I am a scientist (my college told me so), I can deduce through reasoning that there will be no chemo for Dad. That, and he told me that's what the doctor told him.
So tomorrow, it's the switchover to the surgically-created Indiana Pouch, which means sheddin' the 'clear purse'.
And Wednesday, a cancer-free drive home with Uncle Tom to Greenville.
Cheers (clink).
Sunday, August 26, 2007
Drive
The roads here in Cleveland are pathetic. Seriously bad. This is coming from someone who rode in the backseat of a Buick LeSabre station wagon in the mid 80s on Detroit's I-275 (much of which could barely pass for 'paved'), learned that much of Oklahoma STILL barely passes for paved once outside of the cities, and currently navigates the streets of Boston -- convinced that my car could sink right down into a spontaneously created section of the harbor at any moment.
Yet they've been perfect to navigate for the last couple of days as Dad and I have attempted to get out of the hospital/hotel/campus environment and wander aimlessly. Funny thing is, this could have been any weekend day 20 years ago. I remember countless times, Dad saying 'let's go for a drive', which meant we had a roundtrip ticket to nowhere in particular. I remember one said drive during the excruciatingly hot drought-summer of 1988 in Illinois, where we drove out to Dixon (boyhood home of Ronald Reagan), sat on a bench in some state park that should have been lush and green but was roasted into a yellowy-brown earthen, and ate a lunch from a cooler that he had packed earlier. There were probably a billion other places I wanted to be as a 14 year old. I like that I have that scorching hot day burned into my brain instead.
Friday, we took a drive to nowhere in particular...through Shaker Heights for a some lunch; down through Southeast Cleveland's suburbs to get the car washed; through a hilly area down by the river where we saw one of Dad's favorite cars he owned - a '67 Pontiac Grand Prix convertible; then back through one of the most blighted areas in Cleveland's east side, up 93rd street. Yesterday, we took another aimless wander over to the West side of Cleveland on the shores of Lake Erie, through areas called Rocky River and Lakewood. I chose that area to wander in because I like architecture -- and this place seriously looked like a bunch of architects did some quality drugs and then started building. So many styles -- from New England Farmhouse to Spanish California -- we both really enjoyed it.
We stopped off for lunch at a place called Bearsden's, a staple since 1948. I had a peanut butter burger...only because it was on the menu, begging to be tried. It was...interesting, to say the least. And after a couple of days of driving around away from hospitals and the same surroundings we've known for the month of August -- it tasted like normal.
Friday, August 24, 2007
Downshifting
I haven't done this little in a long time. I got a good 8 hours of solid sleep. I had some breakfast with Dad and Uncle Fritz. I did some work while Dad napped, but didn't move much from this spot on the couch. The TV was and is still off. I haven't read any news, nor I do I really care what's going on. That's a nice feeling every now and again, to just take things down a notch.
Dad has had to do that too, especially in his recovery. He's still moving forward just fine. But never in my life have I seen him get up at 8-ish, have breakfast, and have to take a 2 hour nap. I know that is part of the body's way of healing and repairing. It's just very odd to see, for someone that you know typically rises early and doesn't do a whole lot of sitting down until the dishes are washed and put away and the nightcap is poured.
Dad is doing well with his recovery. He's been doing the recommended walking and exercise on the treadmill, figuring out how construction cranes work (hell of a project outside the hotel window -- Mom says he was the 'foreman' in the days before the surgery). His appetite has come back strong, and we're just about to go get some lunch.
Mom went home on Wednesday afternoon...and I think that was a big part of the recovery process too -- recovering her world known as home! It should come as no shock to any of us that one of the first things she did was have her hair done. Princess indeed. She's now been home for two nights in her own bed and her own world with a cranky cat and a content dog and her brother Ed. Only thing missing is Dad, and he'll be there soon enough...in fact, one week from today, everyone will be back in South Carolina.
So we continue driving forward, only in a little lower gear that I'm used to. And I'm content to let it all pass by with some time to stare out the window and enjoy watching it all go by.
Dad has had to do that too, especially in his recovery. He's still moving forward just fine. But never in my life have I seen him get up at 8-ish, have breakfast, and have to take a 2 hour nap. I know that is part of the body's way of healing and repairing. It's just very odd to see, for someone that you know typically rises early and doesn't do a whole lot of sitting down until the dishes are washed and put away and the nightcap is poured.
Dad is doing well with his recovery. He's been doing the recommended walking and exercise on the treadmill, figuring out how construction cranes work (hell of a project outside the hotel window -- Mom says he was the 'foreman' in the days before the surgery). His appetite has come back strong, and we're just about to go get some lunch.
Mom went home on Wednesday afternoon...and I think that was a big part of the recovery process too -- recovering her world known as home! It should come as no shock to any of us that one of the first things she did was have her hair done. Princess indeed. She's now been home for two nights in her own bed and her own world with a cranky cat and a content dog and her brother Ed. Only thing missing is Dad, and he'll be there soon enough...in fact, one week from today, everyone will be back in South Carolina.
So we continue driving forward, only in a little lower gear that I'm used to. And I'm content to let it all pass by with some time to stare out the window and enjoy watching it all go by.
Tuesday, August 21, 2007
Time to Start Packing
I have never been away from my home this long ever I think. It's time to start collecting, and packing and making that delicious trip back. The best part of the ride home is the turn into the driveway...everything that was taxing and troubling sorrowful or bothersome suddenly melts away.
At one point I felt I couldn't bear to walk thru that door because I didn't know what would be on the other side. Yes I truly felt that way. Cleveland will become a distant but extremely poignant memory for all of the Gladfelter family. We will be back for visits in 6 months, and then some far down the line. The good news...we will be coming back...the better news...I cannot wait to open that back door.
Talk to you all in due time...but for now...shhhh...he's napping right now, and I need to start packing.
At one point I felt I couldn't bear to walk thru that door because I didn't know what would be on the other side. Yes I truly felt that way. Cleveland will become a distant but extremely poignant memory for all of the Gladfelter family. We will be back for visits in 6 months, and then some far down the line. The good news...we will be coming back...the better news...I cannot wait to open that back door.
Talk to you all in due time...but for now...shhhh...he's napping right now, and I need to start packing.
The Rain
People don't get why I have this mysterious love affair with Seattle. While I can go on and on about the majestic beauty of the Cascades watching over a vibrant and progressive city which has strangely always felt like I had been there in some previous life, most people retort with "but it always rains there". This isn't true -- summers are beautiful and I like to point out that Greenville gets more annual rain than Seattle (even though Greenville has far fewer cloudy days overall). But I've never minded the rain anyway. I love being confined indoors, with nothing to do but watch a movie or take a nap, clean up or just do nothing.
So it's probably been a good thing that it's been pouring rain in Cleveland the last couple of days, because Dad wouldn't fare very well in Seattle. While he has plenty of indoor things that can keep him moderately happy in his usual day-to-day life, Chuckles is far too outdoorsy to really want to stay inside unless he's given a reason. So it's been nice for him to rest, relax, walk on the treadmill a bit, and get used to feeling just a little bit different than before he went in for the surgery. When I talked to him this morning, he said he was feeling some soreness -- but at least he could pinpoint where it was, as opposed to in the hospital when he'd just feel it all over. Best part of all is the appetite is returning -- Dad has always been a big breakfast guy (on the weekends anwyay, do we still own that terrible griddle that would destroy waffles?), and both yesterday and today he ate things like eggs and I think some bacon (or sausage?) or somethin' like that. Eating is good -- I think both Mom & Dad have lost a little weight over the last couple of weeks!
Tonight, Uncle Fritz will get into Cleveland...which means tomorrow, Mom can go home. I'm sure she is thrilled. If she hasn't counted the days, it totals 21 now. That's a lot of days to be away from home. And next week, by this time, Dad will be just a few days away from making his own journey home.
Sunny thoughts like those are better than any umbrella.
So it's probably been a good thing that it's been pouring rain in Cleveland the last couple of days, because Dad wouldn't fare very well in Seattle. While he has plenty of indoor things that can keep him moderately happy in his usual day-to-day life, Chuckles is far too outdoorsy to really want to stay inside unless he's given a reason. So it's been nice for him to rest, relax, walk on the treadmill a bit, and get used to feeling just a little bit different than before he went in for the surgery. When I talked to him this morning, he said he was feeling some soreness -- but at least he could pinpoint where it was, as opposed to in the hospital when he'd just feel it all over. Best part of all is the appetite is returning -- Dad has always been a big breakfast guy (on the weekends anwyay, do we still own that terrible griddle that would destroy waffles?), and both yesterday and today he ate things like eggs and I think some bacon (or sausage?) or somethin' like that. Eating is good -- I think both Mom & Dad have lost a little weight over the last couple of weeks!
Tonight, Uncle Fritz will get into Cleveland...which means tomorrow, Mom can go home. I'm sure she is thrilled. If she hasn't counted the days, it totals 21 now. That's a lot of days to be away from home. And next week, by this time, Dad will be just a few days away from making his own journey home.
Sunny thoughts like those are better than any umbrella.
Monday, August 20, 2007
From "The Horses Mouth"
Notes From The Halfway House
Well, yesterday they finally sprung me from the “Big House” to the hotel. Aside from being told I am cancer free, this is one of the happiest days in recent memory.
Obviously I am delighted with the result of my hospital stay and am very appreciative of the excellent care received, but each passing 24 hours became more and more like “Ground Hog Day”, an endless repetition of blood drawings, taking of vital signs, hooking up new IV lines, and various tests. I have grown to love the idea of being awakened several times in the middle of the night to have someone stick more needles in my arms.
“So Happy Together”
The best recollection so far is being able to say goodnight to “Naaan” (wife Nancy) and awaking to say good morning to her in the same bed.
“Up Your Nose With A Rubber Hose”
The worst experience is being awake while a couple of nurses wrestle a hose to drain your stomach through your nose. You don’t want any more details.
I will now stay at the hotel through August 28th. Nanc will return to Greenville on Wednesday the 22nd to make sure we still have our house, business, and dog and cat. My stay here will variously accompanied by my brothers Fritz and Tom, and sons Todd and Darin. Tom will drive me home on the 29th.
On the 28th I will:
Have the final external drain tube removed
Learn how to drain my new bladder
Find out from the Oncologist if I will need Chemo upon returning home (my surgeon doesn’t think I will but perhaps it will be a preventative measure)
I sincerely appreciate all your thoughts and prayers, I know they have helped both Nanc and I get though this. I am looking at some 6 weeks of recovery, regaining strength to the point that “The Legend” can add more antidotes to his storied past.
Love you all, Chook
Well, yesterday they finally sprung me from the “Big House” to the hotel. Aside from being told I am cancer free, this is one of the happiest days in recent memory.
Obviously I am delighted with the result of my hospital stay and am very appreciative of the excellent care received, but each passing 24 hours became more and more like “Ground Hog Day”, an endless repetition of blood drawings, taking of vital signs, hooking up new IV lines, and various tests. I have grown to love the idea of being awakened several times in the middle of the night to have someone stick more needles in my arms.
“So Happy Together”
The best recollection so far is being able to say goodnight to “Naaan” (wife Nancy) and awaking to say good morning to her in the same bed.
“Up Your Nose With A Rubber Hose”
The worst experience is being awake while a couple of nurses wrestle a hose to drain your stomach through your nose. You don’t want any more details.
I will now stay at the hotel through August 28th. Nanc will return to Greenville on Wednesday the 22nd to make sure we still have our house, business, and dog and cat. My stay here will variously accompanied by my brothers Fritz and Tom, and sons Todd and Darin. Tom will drive me home on the 29th.
On the 28th I will:
Have the final external drain tube removed
Learn how to drain my new bladder
Find out from the Oncologist if I will need Chemo upon returning home (my surgeon doesn’t think I will but perhaps it will be a preventative measure)
I sincerely appreciate all your thoughts and prayers, I know they have helped both Nanc and I get though this. I am looking at some 6 weeks of recovery, regaining strength to the point that “The Legend” can add more antidotes to his storied past.
Love you all, Chook
Sunday, August 19, 2007
One Step Closer to Home!!
What a day!! My Superman just got back to the suites after thanking so many wonderful people that took such marvelous care of him. Words again never can express our amazement of the entire staff at the clinic from his Surgical team Nursing Staff, Housekeeping and transport. ing. Dr. Fergany and Dr. Kieffer will forever be enshrined in the hearts of our family.
We have some major strength to get back. The hospital discharge, ride back to the suites, (all of 4.5 minutes, a real shower and we are down for a well deserved nap!! Sure wish I had a pot of my Mom's chicken soup to pour into him, but for now I'll rely on whatever the hotel offers up.
The team is assembled to take over for me starting next Wednesday as I will be heading back to SC. A HUGE thanks in advance to Uncle Fritz, Uncle Tom and of course my babies. I've got some catching up to do, but were it not for our Angel Jenna and my big brother Eddie manning the helm I really don't know what we have done. It is so heart warming to see how people in and out of our lives have stepped us for us. And to my girlies Beka and Shayna thank you for opening your hearts and home to Harley!!! A giant shout out of love and thanks to our friends Beth and Chris for the chauffering and bed and breakfast...best in town I've heard!! Love you Jennifer!!! Do good in school and two hands on the wheel please!!!! Chica we loved the books but I love you more....Aunts Terry and Denise...the flowers were lovely!!! Let's get together soon!!! Jude, Joan and Jim as always thanks for being there for us...back at you as well!!! Good luck to you Joano will be thinking of you tomorrow!! Rabbi Jim...you are the best and thanks go to you for being there mostly for me. It continues to help immensely.
I know this sounded pretty rambling, but such is the whole experience...more thank yous to come!!
Keep the prayers ongoing please, and we'll do the same back atcha'
We have some major strength to get back. The hospital discharge, ride back to the suites, (all of 4.5 minutes, a real shower and we are down for a well deserved nap!! Sure wish I had a pot of my Mom's chicken soup to pour into him, but for now I'll rely on whatever the hotel offers up.
The team is assembled to take over for me starting next Wednesday as I will be heading back to SC. A HUGE thanks in advance to Uncle Fritz, Uncle Tom and of course my babies. I've got some catching up to do, but were it not for our Angel Jenna and my big brother Eddie manning the helm I really don't know what we have done. It is so heart warming to see how people in and out of our lives have stepped us for us. And to my girlies Beka and Shayna thank you for opening your hearts and home to Harley!!! A giant shout out of love and thanks to our friends Beth and Chris for the chauffering and bed and breakfast...best in town I've heard!! Love you Jennifer!!! Do good in school and two hands on the wheel please!!!! Chica we loved the books but I love you more....Aunts Terry and Denise...the flowers were lovely!!! Let's get together soon!!! Jude, Joan and Jim as always thanks for being there for us...back at you as well!!! Good luck to you Joano will be thinking of you tomorrow!! Rabbi Jim...you are the best and thanks go to you for being there mostly for me. It continues to help immensely.
I know this sounded pretty rambling, but such is the whole experience...more thank yous to come!!
Keep the prayers ongoing please, and we'll do the same back atcha'
It's time
Mom & Dad are waiting on the folks to come up and discharge them from the Clinic right now!
Friday, August 17, 2007
Happy CFF!!!!
That is the mantra for today my friends and family...Oh...CFF???? CANCER FREE FRIDAY!! Today will be etched in my life now and forever. Todd's post said it all. Now we can begin the long road back to what I refer to as the "new normal".
It still is so overwhelming for me as I try and put these last few weeks and months together. I would be lying to you all and to myself if I didn't honestly tell you that this has been the most difficult and daunting road I have ever traveled. Were it not for the support, love, and prayers, and my boys, and most importantly my Superman...I'm not sure I could find the strength to take that walk too many more times. You have all been there for me, and I will never ever let any of you down, I promise!!
There will be challenges ahead, we all know that, but we can do this...together. Hang in there Harley and Tico...Momma and Daddy will be home soon!
It still is so overwhelming for me as I try and put these last few weeks and months together. I would be lying to you all and to myself if I didn't honestly tell you that this has been the most difficult and daunting road I have ever traveled. Were it not for the support, love, and prayers, and my boys, and most importantly my Superman...I'm not sure I could find the strength to take that walk too many more times. You have all been there for me, and I will never ever let any of you down, I promise!!
There will be challenges ahead, we all know that, but we can do this...together. Hang in there Harley and Tico...Momma and Daddy will be home soon!
No Way
I was taught, as a news reporter, to never bury the lead.
Dr. Fergany told Mom & Dad that it looks like, as of now, follow-up chemo will **NOT** be recommended!
Dad said "Well, I don't want to take this to the bank yet...but finally...some good news!", after eating some semi-appetizing hospital oatmeal.
That, and it looks like we're still on target for a Sunday release from the Clinic.
This is a good day. A very, very, very good day. Keep channeling those good vibes this way.
Dr. Fergany told Mom & Dad that it looks like, as of now, follow-up chemo will **NOT** be recommended!
Dad said "Well, I don't want to take this to the bank yet...but finally...some good news!", after eating some semi-appetizing hospital oatmeal.
That, and it looks like we're still on target for a Sunday release from the Clinic.
This is a good day. A very, very, very good day. Keep channeling those good vibes this way.
Thursday, August 16, 2007
Little Saints Everywhere
Howdy and hello out there. I just got off the phone with Mom (it seems like that's a perpetual motion these days) and she told me that she and Dad were going for a little walk. With Dad's progress coming along (even at the slower-than-desired rate) she even manged to sound upbeat, and for those who know her (which I assume is 99.9% of the people reading this blog), it's very easy to detect even trace amounts of tension in her voice. That "tension" was still there, but quite far removed from the intensity it's reached over the past couple of days, weeks, and months. "It looks like we've really turned a corner today" as she put it. Anyway, it was just nice to hear that kind of tone, and in a way, when she told me that they were going for a walk, it almost seemed...romantic. I am all but positive, however, that the 7th floor of the H building at the Cleveland Clinic is far from the tunnel of love, but does make me feel good that right now, an upbeat Mom and thoroughly beat Dad are walking together, making progress.
In any event, as I learned that the date for dad's release is now set for Sunday, my plans to head down there tomorrow are now scuttled. So the call was made to my friend who agreed to doggy-sit Benny that the need for his services would be placed on hold for short while. His response (to what I am sure was a frantic, over-apologetic, babbling stream of consciousness): "Whatever you need, whenever you need it." Those seven words seem to be a common theme when it comes to all of the people who have been helping out myself, Todd, Mom and Dad in this (and there's no other way to put it) strange time. It really is jaw-dropping to learn how much support you really have out there when something goes wrong, and we're blessed to have such caring people in our lives.
Thanks gang!
-DG-
In any event, as I learned that the date for dad's release is now set for Sunday, my plans to head down there tomorrow are now scuttled. So the call was made to my friend who agreed to doggy-sit Benny that the need for his services would be placed on hold for short while. His response (to what I am sure was a frantic, over-apologetic, babbling stream of consciousness): "Whatever you need, whenever you need it." Those seven words seem to be a common theme when it comes to all of the people who have been helping out myself, Todd, Mom and Dad in this (and there's no other way to put it) strange time. It really is jaw-dropping to learn how much support you really have out there when something goes wrong, and we're blessed to have such caring people in our lives.
Thanks gang!
-DG-
Day Eleven
Yuck. Just the sound of that is nasty. Dad's on his 11th day in the hospital after what was supposed to be just 7-10. Now it's officially 'too long'. That's OK though, because it again seems like things are moving in the right direction. The digestive system is still waking up and doing some things it's supposed to be doing. The nutrition bag Dad is getting intravenously is making him feel stronger. This morning, the nasal-gastric tube just 'fell' out of his nose, and the doctors decided not to put it back in. Swelling is down in his abdomen; and today we're trying clear liquids. If the liquids stay down without problem, then it's onto solid food. The doctors talked a little bit about a release day and put it at Sunday for right now. That would be great if it would happen, but we are just focusing on one day at a time for now.
Today is a big day...let's hope everything goes smoothly and continues marching FORWARD!
Today is a big day...let's hope everything goes smoothly and continues marching FORWARD!
Wednesday, August 15, 2007
Tom Petty Was Right
If you've ever had the delightful pleasure of a hospital stay, you know that you are basically in the middle of a giant machine. The nurses, doctors, orderlies, attendants, pillgivers, pressuretakers, ad nauseum are all part of a well-oiled machine. That said, the machine rivals that of an old tube TV from the 70s sometimes where you have to give it a whack on the side to adjust the picture. I learned in a couple of days there that you do have to stay on top of things, because with so much going on -- it's easy to have things slow down a bit, become delayed, or, get mixed up. I'm not talking about major medicine doses or whatever -- it's the orders. Like the fact that even though the doctors/nurses had ordered a bedside X-ray of Dad's abdomen on Sunday, TWICE someone came up with a wheelchair, ready to roll him down to some other floor in the depths of the hospital. Or the fact that when his diet was switched back to liquids only, a cheerful woman brought in a nice tray of semi-appetizing tuna salad (which should never be a liquid).
Last night, the Nutrition Team decided that it was time to get Dad some vitamins and calories since his digestive system SEEMS to want to get started. A doctor (another whose name I can't remember, but he's only like the best nutrition doctor ever) made a special concoction of stuff in a bag to get Dad's strength level back up. The IV was set to begin at 10pm.
However, due to an 'order mixup', it wasn't started. So when Mom came in this morning, the bag wasn't going. And another emotion - anger - gets to come into play. Actually, it was good to hear Dad was angry. He's starting to feel better almost everywhere else and just needs something to bolster his strength! Needless to say, after Dad threw the nurses out of the room and Mom worked it like only Mom can, and just a short while later -- that bag was going. So we're hoping by the end of the day today, Dad will feel stronger. His digestive system has shown more signs of 'waking up' as well, and that's very promising. It's really the last thing left to get kickin' -- since his vitals all look good, white blood cell count is back to normal, etc.
So at the risk being cliche:
The waiting is the hardest part
Every day you see one more card/
You take it on faith, you take it to the heart/
The waiting is the hardest part
True dat.
Last night, the Nutrition Team decided that it was time to get Dad some vitamins and calories since his digestive system SEEMS to want to get started. A doctor (another whose name I can't remember, but he's only like the best nutrition doctor ever) made a special concoction of stuff in a bag to get Dad's strength level back up. The IV was set to begin at 10pm.
However, due to an 'order mixup', it wasn't started. So when Mom came in this morning, the bag wasn't going. And another emotion - anger - gets to come into play. Actually, it was good to hear Dad was angry. He's starting to feel better almost everywhere else and just needs something to bolster his strength! Needless to say, after Dad threw the nurses out of the room and Mom worked it like only Mom can, and just a short while later -- that bag was going. So we're hoping by the end of the day today, Dad will feel stronger. His digestive system has shown more signs of 'waking up' as well, and that's very promising. It's really the last thing left to get kickin' -- since his vitals all look good, white blood cell count is back to normal, etc.
So at the risk being cliche:
The waiting is the hardest part
Every day you see one more card/
You take it on faith, you take it to the heart/
The waiting is the hardest part
True dat.
Tuesday, August 14, 2007
This Is The Longest Car Ride Ever!!!!
For those of you who don't know, my Superman and I can be in a car for oh whatever and we just don't have much conversation. Not a problem...music playing...an occasional exchange of words and we continue on our way. Chook has not been real responsive today, but I know he is feeling better if even a little...not much to say to me but then again he usually doesn't have a tube running down his nose to his stomach...he looks better and we went for four walks around the unit today, and the best news is....HE IS GETTING A NUTRION BOOST BAG TONIGHT...although you won't find the recipe in any of his issues of Bon Appetite collection...it will be a 4 star delight in terms of helping him get his strength back. Ido not recommend losing 15 pounds his way to anyone!!
The quote of the day..."I just want to get this thing moving forward."
Chuck Gladfelter
I know that all of you who are supporting and loving us share in that thought for sure. Please keep him in your thoughts and prayers. It is really really really working, and Todd, Darin, Chook and myself are so greatful to have all of you in our lives!!
Love and kisses and sweet dreams to all my guys!!!
The quote of the day..."I just want to get this thing moving forward."
Chuck Gladfelter
I know that all of you who are supporting and loving us share in that thought for sure. Please keep him in your thoughts and prayers. It is really really really working, and Todd, Darin, Chook and myself are so greatful to have all of you in our lives!!
Love and kisses and sweet dreams to all my guys!!!
Tuesday AM update
Since I'm still sifting through the backlog at work here, just a quick update. Dad had a much better night and is feeling WAAAAY better today (that's 'way' with four a's). The G-N tube relieved a lot of pressure, got out a lot of nasty stuff, and helped a lot with his infection -- Dad's white blood cell count is much lower than yesterday. Hooray! Mom says he is much more comfortable and got some sleep with the help of an Ambien.
Should have some more update later on today. Thanks again for your continued support, love, and good thoughts/wishes/prayers.
Should have some more update later on today. Thanks again for your continued support, love, and good thoughts/wishes/prayers.
Monday, August 13, 2007
One Giant Step Forward...One Little One Sideways
Today was a really really really long and lousy day. My guy didn't have much fun at all. Hiccups...all day...and this time Todd, Darin, and myself will give him a pass...really having post-op gastro stuff going on as well as an infection somewhere that needs to be addressed. More antibiotics and the dreaded NG tube...no you guys...not that one...the Naso Gastric Tube!!!!! Really unpleasant experience to get but started doing the RIGHT job almost immediately. So instead of looking 8 months pregnant...he looks like he's in about his sixth.
Deep breaths everyone, I know he will be better by tomorrow morning. He was already starting to feel some relief by the time I left around 9:00.
Good night my babies, Momma loves you, and to my Superman...remember Red and Navy Blue!! We'll be on the porch listening to the "munchers and the crunchers" real soon!!! Promise!!!!
Forever,
Naaan
Deep breaths everyone, I know he will be better by tomorrow morning. He was already starting to feel some relief by the time I left around 9:00.
Good night my babies, Momma loves you, and to my Superman...remember Red and Navy Blue!! We'll be on the porch listening to the "munchers and the crunchers" real soon!!! Promise!!!!
Forever,
Naaan
Sidestep
It's been a rough day today for Dad. The doctor checked out Dad this morning and said that he has some kind of infection. They're not sure what it is, but his white blood cell count is up and that indicates they need to zap somethin' somewhere. They did x-rays today for Pneumonia, and took a bunch of cultures....so they can isolate the infection. Meantime, digestive system is also havin' a tough time gettin' kick started on his own, so this evening Dad had a nasal-gastric tube put in. This is already helping to relieve the pressure and buildup of air and fluid in his abdominal organs (I think I have that right). This is NOT a fun tube to have -- Dad says it hurts like crazy...but if it's going to help get his digestive system reset, then it's a good thing.
Tonight Dad should get a little rest. We've told ourselves this is not a step backward...just a little rest stop on the road forward in recovery. So...send a few extra good thoughts out tonight, and hopefully we'll be talkin' about resuming the push to get on out of the hospital and get to gettin' back to feelin' good!
Tonight Dad should get a little rest. We've told ourselves this is not a step backward...just a little rest stop on the road forward in recovery. So...send a few extra good thoughts out tonight, and hopefully we'll be talkin' about resuming the push to get on out of the hospital and get to gettin' back to feelin' good!
Get Out
I didn't get to meet Dr. Fergony (I'm going to try a 3rd spelling here. I'm still not sure this is right. Now that Mom can blog, she can correct me and tell me not to slouch at the same time), but I know the man means business. This is apparantly not a chatty, bouncy, sing-songy doctor who dispenses cheer with each bag of Cipro. He apparently comes in, does his doctoral duties extremely well, and then gets out.
So this morning, he told Mom that 'we are going to get him out of here in a couple of days. Not a few, a couple'. It's great to hear that he is as motivated to get Dad out of the hospital as Dad is to get himself out. Last night Dad had a little digestive action goin' on, which is good...and I think Mom said that the reflux was subsiding a bit. We have *not* had to go back to the nasal tube, which is really good, and let's hope it stays that way. Today Dad will have to have a few tests to figure out why his white blood cell count is slightly elevated. Doc doesn't seem too alarmed about it, but still wants to know what's goin' on. Hopefully between some tests today, Dad will give some real food a try again.
Some of the best medicine is still gettin' up out of bed and walking. Now that Dad's pain is almost down to zero, he's much more eager to get up and take a stroll (with his little IV cart and everything). Get up and WALK, Dad!
By the way, yesterday Dad got to read the blog for the first time. He really liked it and especially liked reading your comments and good wishes. It's one more thing that helped make him want to get out as quick as possible so he can see y'all instead of just reading your comments.
More later. Think OUT!
So this morning, he told Mom that 'we are going to get him out of here in a couple of days. Not a few, a couple'. It's great to hear that he is as motivated to get Dad out of the hospital as Dad is to get himself out. Last night Dad had a little digestive action goin' on, which is good...and I think Mom said that the reflux was subsiding a bit. We have *not* had to go back to the nasal tube, which is really good, and let's hope it stays that way. Today Dad will have to have a few tests to figure out why his white blood cell count is slightly elevated. Doc doesn't seem too alarmed about it, but still wants to know what's goin' on. Hopefully between some tests today, Dad will give some real food a try again.
Some of the best medicine is still gettin' up out of bed and walking. Now that Dad's pain is almost down to zero, he's much more eager to get up and take a stroll (with his little IV cart and everything). Get up and WALK, Dad!
By the way, yesterday Dad got to read the blog for the first time. He really liked it and especially liked reading your comments and good wishes. It's one more thing that helped make him want to get out as quick as possible so he can see y'all instead of just reading your comments.
More later. Think OUT!
Sunday, August 12, 2007
I KNOW I'M NOT IN KANSAS ANYMORE
I just want to let everyone know that I am OK and trying to be the Lois Lane to my Superman…who knew that a stay in Cleveland Ohio could cost three times as much as a vacation in Maui…all things considered my loves…I’d rather be in Cleveland!!!
I am so greatful and in awe of all of the support that we have received from family friends both old and new...you are all treasures to Chuck, Todd, Darin and myself. The old addage of words cannot begin to express...I cannot find the words...
All of your kind words and mostly your prayers have added immensely to Chuck's healing process...if I may please enlist all of you to keep it up for him, we promise to "pay it forward".
And as another day in Cleveland draws to an end I look forward to the sun coming up tomorrow.
A special good night and love to my guys!!! Momma loves you!!!
I am so greatful and in awe of all of the support that we have received from family friends both old and new...you are all treasures to Chuck, Todd, Darin and myself. The old addage of words cannot begin to express...I cannot find the words...
All of your kind words and mostly your prayers have added immensely to Chuck's healing process...if I may please enlist all of you to keep it up for him, we promise to "pay it forward".
And as another day in Cleveland draws to an end I look forward to the sun coming up tomorrow.
A special good night and love to my guys!!! Momma loves you!!!
Your Comfort Zone
Sometimes it's easy to find, sometimes it's tough to leave. I think we're all experiencing that again here on Sunday evening. First off, your good thoughts must have worked -- because Dad is much more comfortable today. In fact, most of the day he's described to the nurses that he has 'no pain'. The worst thing today has been some acid reflux, which Dad refers to with in the cutest of terms 'the pukies'. Hopefully they'll be able to square that away. For that reason, though, he hasn't felt much like eating, so he's back to a liquid diet. If they can get his reflux under control, and get back to eating and everything that goes along post-eating, we're goin' to be really close to being discharged from the Clinic.
I'm about to head to the airport to head home to Boston. I hate that I have to go...but there's just a few things that I need to check on back at the homestead since I haven't been there in about 13 days. I hate that I'm going back while Mom and Dad stay - I know it's been great for her that she can have someone else with her. And as I told her -- I'm always just a flight away. With any luck and your continued good thoughts and prayers, Dad will be out soon and the next time I head over to Cleveland will be next week to watch over him post-release while he's attending his follow up appointments. We're all moving in and out of our comfort zones here -- but I know that with great folks to lean on, and each other, we're in the zone no matter what.
Remember to hug someone ya love next time you see them...no matter where they are.
I'm about to head to the airport to head home to Boston. I hate that I have to go...but there's just a few things that I need to check on back at the homestead since I haven't been there in about 13 days. I hate that I'm going back while Mom and Dad stay - I know it's been great for her that she can have someone else with her. And as I told her -- I'm always just a flight away. With any luck and your continued good thoughts and prayers, Dad will be out soon and the next time I head over to Cleveland will be next week to watch over him post-release while he's attending his follow up appointments. We're all moving in and out of our comfort zones here -- but I know that with great folks to lean on, and each other, we're in the zone no matter what.
Remember to hug someone ya love next time you see them...no matter where they are.
Saturday, August 11, 2007
I Heart Golf
Tiger Woods really doesn't interest me. I mean, he's cool and all, and despite the fact that he's a hell of a golfer...watching him walk around a course all afternoon with sweat-soaked (and mildly unattractive) pants is not my idea of fun.
Dad, however, has always enjoyed watching golf. I've never really understood why; it's just so boring...but he's always had the Open, the Masters, or whatever other tourney that's being played on the TV on Saturday and Sunday afternoons.
Today, after a few laps around the 7th floor, I watched golf with Dad for awhile. And I've never enjoyed it more. It's important to be able to sit with him and let him know that we are there, feeling the same anxiety about wanting to get the hell out of that place. It's important for him to know we feel every bit of his pain and wish that we could take it all away.
I know if you're readin' this, you're sending the best positive energy directed to the east side of Cleveland. And if I had one request tonight -- it would be to crank up those good vibes just a little stronger -- so Dad can get comfortable, get some rest, and get to gettin' out.
Off to enjoy this comfortable patio and a nice dinner that isn't within walking distance of the hospital. More updates tomorrow...and thanks for checking in on us!
Dad, however, has always enjoyed watching golf. I've never really understood why; it's just so boring...but he's always had the Open, the Masters, or whatever other tourney that's being played on the TV on Saturday and Sunday afternoons.
Today, after a few laps around the 7th floor, I watched golf with Dad for awhile. And I've never enjoyed it more. It's important to be able to sit with him and let him know that we are there, feeling the same anxiety about wanting to get the hell out of that place. It's important for him to know we feel every bit of his pain and wish that we could take it all away.
I know if you're readin' this, you're sending the best positive energy directed to the east side of Cleveland. And if I had one request tonight -- it would be to crank up those good vibes just a little stronger -- so Dad can get comfortable, get some rest, and get to gettin' out.
Off to enjoy this comfortable patio and a nice dinner that isn't within walking distance of the hospital. More updates tomorrow...and thanks for checking in on us!
Seeing Is Believing
Wow.
I started to type some sort of an into to this post, but erasing it all and replacing it with the single word above is probably more appropriate.
Nothing can ever prepare you for seeing someone you love in a hospital. I arrived in Cleveland last night late, about 10:30, and Mom asked me if I wanted to go over and see him. She knew I did. So we went.
I could tell Dad was happy I was there, even though he was in some discomfort. Which leads us to where we are now -- the part where artificial, medical things wind down and the real body takes back over. That transition process is not the most fun. For now, there's a lot of functions kicking back in -- so there is some moderate discomfort from things like gas.
Another of Dr. Fergony's (I hope I'm finally spelling his name right now) residents stopped in today. They said Dad is continuing to look great. The resident pulled some of the stents out that were helping things drain, and hopefully tomorrow we can start to get rid of more of those tubes. Mom asked if Dr. Fergony would be coming by today, and the resident said "he'll only come by if one of his patients is really sick. And I'm sorry, but your husband just doesn't fit into that category." Onward!
I'm heading back over to the Clinic to do 'horseshoes' with Dad (that's the laps) and to give him his iPod back (somehow the 'volume limit' thing got enabled with a password. WTF is that?)
Thanks for checking in. More later!
I started to type some sort of an into to this post, but erasing it all and replacing it with the single word above is probably more appropriate.
Nothing can ever prepare you for seeing someone you love in a hospital. I arrived in Cleveland last night late, about 10:30, and Mom asked me if I wanted to go over and see him. She knew I did. So we went.
I could tell Dad was happy I was there, even though he was in some discomfort. Which leads us to where we are now -- the part where artificial, medical things wind down and the real body takes back over. That transition process is not the most fun. For now, there's a lot of functions kicking back in -- so there is some moderate discomfort from things like gas.
Another of Dr. Fergony's (I hope I'm finally spelling his name right now) residents stopped in today. They said Dad is continuing to look great. The resident pulled some of the stents out that were helping things drain, and hopefully tomorrow we can start to get rid of more of those tubes. Mom asked if Dr. Fergony would be coming by today, and the resident said "he'll only come by if one of his patients is really sick. And I'm sorry, but your husband just doesn't fit into that category." Onward!
I'm heading back over to the Clinic to do 'horseshoes' with Dad (that's the laps) and to give him his iPod back (somehow the 'volume limit' thing got enabled with a password. WTF is that?)
Thanks for checking in. More later!
Friday, August 10, 2007
Let 'Em Eat...?
Howdy folks! Darin here and I just got off the phone with mom who told me that they were going to let Dad have solid food tonight. That's a big step for him as he really hasn't had the pleasure of chewing food since last Friday. So with the duality of blessing/curse in mind, I'm sure that he's stoked about getting to eat solid foods, but less than enthusiastic about eating hospital cuisine. However, much like his desire to be mobile on his feet, when it comes to enjoying food, he's going to have to take baby steps.
I actually talked to him today and he told me that more tubes have been removed, which makes him both happy and hopeful that he'll continue on the road to a fast recovery. His spirit is definitely willing, his flesh is certain to follow suit.
After quickly being brought up to date on his recovery, the second half of our conversation dealt with him trying to figure out why he can't adjust the volume on his Ipod. As he explained the problem, I was at a loss as to how to help him out. Now if you're familiar with Dad's temper when it comes to not being able to master modern technologies, you can probably get a beat on how much I was dreading a Vesuvius-type explosion from the other end of the phone. However, Dad seemed to take the whole thing with a "no biggie" attitude. Perhaps in the face of a radical surgical procedure and the overwhelming support from family, friends and the matter-of-fact Saints who inhabit this world, a temporarily stubborn Ipod just ain't a big deal. However, having said that, It is my hope that in post-recovery future, Dad will once again don his armor and do battle with the evil forces of technology. Perhaps we'll have to get him an Iphone for Christmas. Look for a hilarious Youtube video (and the trademarked line "THIS IS FU**ING PREPOSTEROUS!) sometime in late December.
-DG-
I actually talked to him today and he told me that more tubes have been removed, which makes him both happy and hopeful that he'll continue on the road to a fast recovery. His spirit is definitely willing, his flesh is certain to follow suit.
After quickly being brought up to date on his recovery, the second half of our conversation dealt with him trying to figure out why he can't adjust the volume on his Ipod. As he explained the problem, I was at a loss as to how to help him out. Now if you're familiar with Dad's temper when it comes to not being able to master modern technologies, you can probably get a beat on how much I was dreading a Vesuvius-type explosion from the other end of the phone. However, Dad seemed to take the whole thing with a "no biggie" attitude. Perhaps in the face of a radical surgical procedure and the overwhelming support from family, friends and the matter-of-fact Saints who inhabit this world, a temporarily stubborn Ipod just ain't a big deal. However, having said that, It is my hope that in post-recovery future, Dad will once again don his armor and do battle with the evil forces of technology. Perhaps we'll have to get him an Iphone for Christmas. Look for a hilarious Youtube video (and the trademarked line "THIS IS FU**ING PREPOSTEROUS!) sometime in late December.
-DG-
There's always room for J-E-L-L-O
Ugh, I can't think of anything nastier. In college, my fraternity had an entire party that was founded on it. We filled the basement with it, made a giant slide coated in it, and mixed any booze that would solidify with it.
But it's the first thing Dad gets to eat now. Clear liquids day -- jello, tea, coffee, that kind of stuff. His body is responding well to it, doing everything your body should do after ya eat. And that's one step closer to gettin' out!
We're hoping that today, some of the drainage tubes will be removed as well.
Dad has been doing his 'NASCAR laps' around the floor, walking more and with less discomfort. This morning, he had a paper and kicked out some more jams on the iPod.
Hopefully we'll hear back about the pathology report soon, so we can plan for whether any follow up chemo will be necessary.
Flying up to Cleveland tonight so not sure if there will be another post today...but I will do my best.
Enjoy the weekend!
But it's the first thing Dad gets to eat now. Clear liquids day -- jello, tea, coffee, that kind of stuff. His body is responding well to it, doing everything your body should do after ya eat. And that's one step closer to gettin' out!
We're hoping that today, some of the drainage tubes will be removed as well.
Dad has been doing his 'NASCAR laps' around the floor, walking more and with less discomfort. This morning, he had a paper and kicked out some more jams on the iPod.
Hopefully we'll hear back about the pathology report soon, so we can plan for whether any follow up chemo will be necessary.
Flying up to Cleveland tonight so not sure if there will be another post today...but I will do my best.
Enjoy the weekend!
Thursday, August 9, 2007
How YOU doin'?
So maybe it's appropriate that I happen to be watching not-quite-as-funny-as-it-was-when-it-first-aired 'Friends' episodes, when our longtime friend Toni asks to hear how everyone else in the family is doing (I try to imagine her imitating Joey...it kind of makes me chuckle).
We're doin' OK. For anyone who's been through anything like this, I don't think I have to tell you that it's like putting all of your emotions into a blender and selecting 'frappe'. It becomes a concotion that marries a bunch of flavors, and tastes anywhere from decent to downright disgusting, depending on the time of day you take a sip. For so long (actually, it was measured in weeks, but seems much longer), we waited for the surgery day to arrive. We physically prepared -- packing, arranging who's going to be where and when...and we mentally prepared, trying to come to grips with the fact that everything seemed to be going along so well before some amateur, aspiring magician yanked the tablecloth out from under our neatly-set table. We reminded ourselves that we have to be strong and positive. And then the surgery day came. It went so well. We cried because we were happy and relieved.
And then we realized that for every mountain you climb, you have to shimmy your way back down. Down Cancer Mountain we go, this part of the journey called 'recovery'.
And the truth? TISNF. You've seen that commercial with the mom grilling the girl about texting, and the girl protests in the above text-speak. It's so not fair. And for everyone who says 'life's not fair', I say 'yep, and we're allowed to voice protest to that anytime we feel like it'. So we're getting through by vocalizing to one another that it sucks. And that Mom wants to go home and wants Dad to be able to go home, to actually sleep through the night and eat a real meal without tubes and nurses. And that I want all this medical jargon to be a part of my historical vocabulary. And that crying gets old and generally makes one feel unattractive and puffy.
And we're so fortunate to be vocal to one another about having to delay plans...rather than not have the chance to make plans at all.
Each time we talk, we remind ourselves that we *are* OK. We've got Chuck and we've got each other. The one thing that we always end up talking about -- We have all of you to thank for helping us on both sides of the journey. You know us -- we're a ridiculously strong and stubborn family, another 'frappe' of unique personalities who've managed to add some of the best people in the world into the blender.
If we didn't have that, who could we turn to?
IDK...my BFF Jill?
We're doin' OK. For anyone who's been through anything like this, I don't think I have to tell you that it's like putting all of your emotions into a blender and selecting 'frappe'. It becomes a concotion that marries a bunch of flavors, and tastes anywhere from decent to downright disgusting, depending on the time of day you take a sip. For so long (actually, it was measured in weeks, but seems much longer), we waited for the surgery day to arrive. We physically prepared -- packing, arranging who's going to be where and when...and we mentally prepared, trying to come to grips with the fact that everything seemed to be going along so well before some amateur, aspiring magician yanked the tablecloth out from under our neatly-set table. We reminded ourselves that we have to be strong and positive. And then the surgery day came. It went so well. We cried because we were happy and relieved.
And then we realized that for every mountain you climb, you have to shimmy your way back down. Down Cancer Mountain we go, this part of the journey called 'recovery'.
And the truth? TISNF. You've seen that commercial with the mom grilling the girl about texting, and the girl protests in the above text-speak. It's so not fair. And for everyone who says 'life's not fair', I say 'yep, and we're allowed to voice protest to that anytime we feel like it'. So we're getting through by vocalizing to one another that it sucks. And that Mom wants to go home and wants Dad to be able to go home, to actually sleep through the night and eat a real meal without tubes and nurses. And that I want all this medical jargon to be a part of my historical vocabulary. And that crying gets old and generally makes one feel unattractive and puffy.
And we're so fortunate to be vocal to one another about having to delay plans...rather than not have the chance to make plans at all.
Each time we talk, we remind ourselves that we *are* OK. We've got Chuck and we've got each other. The one thing that we always end up talking about -- We have all of you to thank for helping us on both sides of the journey. You know us -- we're a ridiculously strong and stubborn family, another 'frappe' of unique personalities who've managed to add some of the best people in the world into the blender.
If we didn't have that, who could we turn to?
IDK...my BFF Jill?
The Natives Are Restless
"You know, it's kind of like 'Groundhog Day'".
I can only imagine.
While Dad continues the healing process, it's only taken 3 days of basically being in a bed for him to want to get the heck out. I would guess it would be the equivalent for sitting still, with the exception of someone poking at ya every now and again. Ick. Still, we all know that it's part of the healing process, and soon enough, he'll be out and on his feet. That's going to be an amazing day that we're looking forward to celebrating. For now though, it's still all about getting well.
Still good stuff: Dad's a walking machine. He says there's little in the way of actual 'pain', it's more like soreness that you get from layin' around all day, then trying to exert all your energy into something. More good stuff: 'Was that you, or did a dump truck just rumble on by?'. All the pieces and parts are starting to get moving again, which is good after a surgery where they do replumbing. It's especially good because soon, the foodie will get to eat some real food...because I've yet to see a chic restaurant touting a menu of only 'clear liquids'.
Most of the medical stuff has been pretty standard -- chest xrays, irrigation, vitamins, etc. It's good to hear the energy and the edge in Dad's voice...a clear indication that we're continuing to walk down Recovery Road.
And as a completely related aside: Shreveport, LA, is ungodly hot, humid, and nasty.
Talk with you soon!
I can only imagine.
While Dad continues the healing process, it's only taken 3 days of basically being in a bed for him to want to get the heck out. I would guess it would be the equivalent for sitting still, with the exception of someone poking at ya every now and again. Ick. Still, we all know that it's part of the healing process, and soon enough, he'll be out and on his feet. That's going to be an amazing day that we're looking forward to celebrating. For now though, it's still all about getting well.
Still good stuff: Dad's a walking machine. He says there's little in the way of actual 'pain', it's more like soreness that you get from layin' around all day, then trying to exert all your energy into something. More good stuff: 'Was that you, or did a dump truck just rumble on by?'. All the pieces and parts are starting to get moving again, which is good after a surgery where they do replumbing. It's especially good because soon, the foodie will get to eat some real food...because I've yet to see a chic restaurant touting a menu of only 'clear liquids'.
Most of the medical stuff has been pretty standard -- chest xrays, irrigation, vitamins, etc. It's good to hear the energy and the edge in Dad's voice...a clear indication that we're continuing to walk down Recovery Road.
And as a completely related aside: Shreveport, LA, is ungodly hot, humid, and nasty.
Talk with you soon!
Wednesday, August 8, 2007
Come On Over
Quick update from the airport:
I talked to a much heartier Dad today. I believe he might have been inviting the nurses back to his hotel when they gave him a little too much morphine earlier on. Now that they have all that squared away, everyone is much more coherent and comfortable.
Dad got another walk around today, although Mom says it was more of a 'trot' and the nurses had to keep telling him to slow down. Good luck with that, nurses. Mom has tried for some 33+ years to no avail ;-)
I will be heading up to Cleveland on Friday to join the party. I am excited to get to see Dad and to give him a hug. Mom too!
I talked to a much heartier Dad today. I believe he might have been inviting the nurses back to his hotel when they gave him a little too much morphine earlier on. Now that they have all that squared away, everyone is much more coherent and comfortable.
Dad got another walk around today, although Mom says it was more of a 'trot' and the nurses had to keep telling him to slow down. Good luck with that, nurses. Mom has tried for some 33+ years to no avail ;-)
I will be heading up to Cleveland on Friday to join the party. I am excited to get to see Dad and to give him a hug. Mom too!
Wednesday AM update
Mom called this morning after seeing the doctor. Good things: vitals look great; no more oxygen (one less tube!), and fluids are clear. Tough things: Dad didn't have a very comfortable night. Dr. Kiefer switched him back to morphine this morning, so the button will be a little more powerful. Hopefully he'll be able to get a little more rest then this morning and in the early afternoon.
Somehow, we've managed to orchestrate this crazy conga of juggling the rest of everyday life. The frame shop is still in good working order and we're pretty caught up. Big shout-out to Jenna Plating, our CPF (Certified Professional Framer) and my 'big sis', who put in a lot of hours and is about to put in a lot more. Without her, it would not be so easy. Love ya J!
Keep thinkin' those good thoughts!
Somehow, we've managed to orchestrate this crazy conga of juggling the rest of everyday life. The frame shop is still in good working order and we're pretty caught up. Big shout-out to Jenna Plating, our CPF (Certified Professional Framer) and my 'big sis', who put in a lot of hours and is about to put in a lot more. Without her, it would not be so easy. Love ya J!
Keep thinkin' those good thoughts!
Tuesday, August 7, 2007
Baby steps
Leave it to Mr. I-can't-be-idle to decide that while he's having a blood transfusion (to get his hemoglobin levels better), he wants to get up and try walking. On his own two feet for a little bit right now...not quite a 'walk in the park', but not bad either ;-)
GOODBYE CLEVELAND! (well, for one of us)
Howdys and hello folks out there, it's Darin here, and as Mom and I finished lunch we came back to find a still-sleeping Dad looking somewhat relaxed with his Ipod (you know the one his favorite son bought him last Christmas) playing and his sleeping mask firmly in place. Mom and I aren't sure, but we think that he is now pushing his pain-relief button subconsciously in his sleep; I mean what other explanation could there be for him not acknowledging our presence in the room? I will say that he looks so much better now that he has that tube out of his nose (I was lucky enough to see it being removed and it was pretty awesome, although Dad said that it was a pain equal to, if not greater than his first catheter experience). So that's one tube down, like 18 more to go.
In a few moments I'll be heading up to see Dad one more time before I leave Cleveland for Chicago (but not to worry, I'll be back in a short while to further help out). Before today I had a heavy heart about being with Mom and Dad for such a short time, but now I leave with the confidence that he IS getting the best care he possibly could, both from staff here and my Mom, who has constantly surprised me with her level of awareness as to Dad's progression...she really knows her shit. There's still a lot of road to travel, but Mom clearly knows the route.
I've been writing this from the main waiting area of the surgery center (Internet access is free here), and as I occasionally look up from my work I see a lot of people who are now in the same boat that Mom and I, and Todd (via the phone) were in. We were trying as hard as we could to make ourselves comfortable while we waited for any news as to how Dad was doing. It was a day of heavy sighs, temple rubbing, small talk, passing humor and endless people watching that eventually climaxed in the news that everything had gone smoothly, and Dad was doing okay. The waiting area for me is now just a place for free internet, but for the people who are here now, just waiting for news or the chance to see their loved ones, it still has that forboding air to it. It is my hope that a long day spent waiting and worrying will turn out as well as it has for my dad...if they're here, it likely will.
Now, in the spirit of levity, I'd just like to mention some of the things that have brought smiles to my face while I've been here:
- There's nothing funnier than seeing an elevator door open and a group of Amish people pouring out
- NASCAR fans are very, very easy to identify
- Asian people saying words with a lot of L's in them is comedy gold, i.e. umbrella
- There are people who still have mullets in America
- Even nurses snicker when a patient lets an audible (and in this case loud and wet) fart go
- Thanks to a relaxed hospital dress code, the fantasy of sacking a "sexy nurse" is now completely gone from the male sex-drive (although there are still an ungodly amount of hot chicks prowling the hospital)
- Thanks to Gray's Anatomy, every male doctor, no matter how gawky-looking he is, thinks that he is the real-life equivalent to Dr. McDreamy, and walks the hospital with that kind of cocky swagger. Sorry to rain on your parade Dr Stolvitis.
Well, that's all for now, but in the coming days, look for an update in which I tell everybody about a group of people known as THE STOMA NURSES.
Bye fer now,
-DG-
Request Update
Hello, this is the other Gladfelter brother chiming in for a moment or two with a little clarification as to Chuck's request about donations. In lieu of flowers, money sent to the American Cancer Society is greatly appreciated. However, it must also be said that any donations you'd wish to send to the currently unemployed Darin Gladfelter are really, really appreciated. Okay, I'm kidding (not really). I am however just about to bring dad's camera up to his room so we just may see a picture or two later on today. He's also asked for his Ipod so that he can kick out some jams. I'll post a little more later. Bye fer now.
-DG-
-DG-
Request
Mom told Dad we were keeping a blog of what's going on...and he asked that we put one thing on. Some of you have asked for the Clinic address/room # to send flowers. Since he's all congested anyway and can't smell them -- Dad's asked that you consider making a donation to cancer research instead. Since there are so many groups out there, and I don't know much about 'em all, here's a link to the American Cancer Society. Thanks again for all your good thoughts, prayers, notes, calls, and brownies. I'm huge on the brownies.
Sit. Stay!
While yesterday was full of difficult medical procedures, today is equally as hard...because it involves taking someone full of energy and tryin' to get him to sit still!
Mom called with an update after speaking to Dr. Furgoni. First, Doc says Dad is looking very good for Day #1 post-op. He's hungry, but today he'll only get to munch on ice chips (completely unfair to a self-proclaimed foodie). His fluids are running clear (that's good), and later on today he should get one of the tubes out of his nose (also good). Dad did have a small temperature this morning but Dr. F said it's nothing to worry about.
For me, the best part of the morning was getting to talk to Dad on the phone. It was great to hear his voice and sounds remarkably strong for someone who's been through what he's had to go through the last 24 hours. He asked a lot about the store, which tells me everything is all good ;-) Right now, the thing bothering him the most is how congested he is (especially in his sinuses/ears), something that's natural after major surgery due to all the air that gets in, etc.
Dad won't be able to do his walkin' today -- Dr. F says he's not quite ready for that. So today, much like his beloved Harley (you know, the dog to the left), he'll just have to do a lot of sittin' up to clear out some of the congestion, and rest as much as he can to keep comfortable.
Quote of the day, from Darin: "Funny, Dad, you push the jeopardy [morphine] button, and Mom goes away." Heh. Humor is good medicine.
Mom called with an update after speaking to Dr. Furgoni. First, Doc says Dad is looking very good for Day #1 post-op. He's hungry, but today he'll only get to munch on ice chips (completely unfair to a self-proclaimed foodie). His fluids are running clear (that's good), and later on today he should get one of the tubes out of his nose (also good). Dad did have a small temperature this morning but Dr. F said it's nothing to worry about.
For me, the best part of the morning was getting to talk to Dad on the phone. It was great to hear his voice and sounds remarkably strong for someone who's been through what he's had to go through the last 24 hours. He asked a lot about the store, which tells me everything is all good ;-) Right now, the thing bothering him the most is how congested he is (especially in his sinuses/ears), something that's natural after major surgery due to all the air that gets in, etc.
Dad won't be able to do his walkin' today -- Dr. F says he's not quite ready for that. So today, much like his beloved Harley (you know, the dog to the left), he'll just have to do a lot of sittin' up to clear out some of the congestion, and rest as much as he can to keep comfortable.
Quote of the day, from Darin: "Funny, Dad, you push the jeopardy [morphine] button, and Mom goes away." Heh. Humor is good medicine.
Monday, August 6, 2007
Cleveland Rocks
Thanks to our great friends (and chefs) Shayna and Rebecca, I'm now well fed and feeling a lot better than I have in weeks. Mom & Darin updated me this evening after visiting with Dad. He's been moved to a regular room now so he can git to gittin' better.
Mom & Darin both said that he was a little in-n-out, as the anesthesia was wearing off and the morphine was kicking in. They were able to talk to him a little bit and said his eyes lit up when he heard we had a healthy financial day at the store! For now, he's working on getting good rest under the watchful care of the folks at the Clinic. I can't tell you how lucky we feel that he's there under such great care. This afternoon, Dr. Furgoni's resident (I can't remember her name) came down and briefed Mom & Darin on what he'll be going through the next couple of days. Basically, it's all about keeping him on the upswing and rest. Right now, his kidney function looks good and they're trying to make him as comfortable as possible.
Tomorrow, Dad should be able to get up and walk around a little bit. And knowing him, Wednesday he'll be working on remodeling the Nurse's Station and cooking Paul Prudhomme recipe up for his floor.
I think we're all feeling so many things, but nothing greater than a huge wave of relief, buoyed by the well-wishes and love of our immediate and extended family all over. Thanks again for being there for us. More tomorrow.
Mom & Darin both said that he was a little in-n-out, as the anesthesia was wearing off and the morphine was kicking in. They were able to talk to him a little bit and said his eyes lit up when he heard we had a healthy financial day at the store! For now, he's working on getting good rest under the watchful care of the folks at the Clinic. I can't tell you how lucky we feel that he's there under such great care. This afternoon, Dr. Furgoni's resident (I can't remember her name) came down and briefed Mom & Darin on what he'll be going through the next couple of days. Basically, it's all about keeping him on the upswing and rest. Right now, his kidney function looks good and they're trying to make him as comfortable as possible.
Tomorrow, Dad should be able to get up and walk around a little bit. And knowing him, Wednesday he'll be working on remodeling the Nurse's Station and cooking Paul Prudhomme recipe up for his floor.
I think we're all feeling so many things, but nothing greater than a huge wave of relief, buoyed by the well-wishes and love of our immediate and extended family all over. Thanks again for being there for us. More tomorrow.
The King's English
Mom & Darin just got a peek at Dad in the recovery room. Dad's very woozy, to be expected... but he did manage to get 2 cursewords out of his mouth.
Yep, he'll be fine.
Yep, he'll be fine.
Great News!
Mom just called! Dad is out of surgery and in recovery. The surgeon told Mom that everything went well and that the operation went as planned. The best part is the 'replumbing'. Dr. Furgoni was able to construct something called an Indiana Pouch (see, there really *is* more than corn in Indiana)... meaning that he will not have to have any kind of external bag. For an active guy...this is crucial...and we are very confident this will allow him to continue to do all his framing, playing in the woods, and other Chuck-like activities we all enjoy!
Darin and Mom will get to see him in a few hours. Right now, we are all breathing a big sigh of relief and sheddin' a few happy tears.
Darin and Mom will get to see him in a few hours. Right now, we are all breathing a big sigh of relief and sheddin' a few happy tears.
What up?
Howdy from South Carolina...Todd here. I'm helping run the store while Dad is on his dream vacation in Cleveland! :)
I'm putting this blog up to keep you updated on Dad's progress, since so many of you have called or written to ask how he is doing.
Right now, Dad is in the middle of his surgery. He went to the Cleveland Clinic bright and early this morning with Mom and Darin, and went in for his operation at about 830am. We're told the entire procedure will take between 6 and 7 hours. Mom says he was anxious to get on with it, and if you know Dad...it's about what you'd expect!
For some background...Dad was diagnosed with bladder cancer toward the end of June/beginning of July after they removed part of a baseball-size tumor. Tests showed it was malignant, and the doctors here told him he would have to have a radical cystectomy...meaning the removal of his bladder, prostate, and lymph nodes. Obviously, there is some replumbing that goes on down there after a procedure of that nature, and right now we're not quite sure how that replumbing is going to go -- the doctors can't say what they'll do until the procedure is underway and they can get a better look. Dad was referred to the Cleveland Clinic, well known for its treatment of cancer.
After the procedure, the doctors tell us Dad will have to spend about a week in the hospital recovery. Then, he'll be released, but stay in Cleveland for some follow up. There is a likelihood that he will have to have some follow-up Chemo when he returns to Greenville...but for now, we're told that he probably won't have to have any radiation, which is great news!
The people at the Cleveland Clinic have been really good. Dad especially liked the nurse who, after a procedure to get his kidney function doing a little better earlier last week, told him that gin absolutely counts as one of the clear liquids he needed to drink. The surgeon, Dr. Furgoni, is an excellent doctor with an amazing reputation...and he has been able to keep everbody at ease.
As a family, we can't thank you enough for all your concern, calls, and prayers. We're really lucky to have so many caring and supportive people in our lives.
Please feel free to leave a comment below.
I will post updates here as we get them and as I'm able. Thanks again. With love -- The Gladfelters
I'm putting this blog up to keep you updated on Dad's progress, since so many of you have called or written to ask how he is doing.
Right now, Dad is in the middle of his surgery. He went to the Cleveland Clinic bright and early this morning with Mom and Darin, and went in for his operation at about 830am. We're told the entire procedure will take between 6 and 7 hours. Mom says he was anxious to get on with it, and if you know Dad...it's about what you'd expect!
For some background...Dad was diagnosed with bladder cancer toward the end of June/beginning of July after they removed part of a baseball-size tumor. Tests showed it was malignant, and the doctors here told him he would have to have a radical cystectomy...meaning the removal of his bladder, prostate, and lymph nodes. Obviously, there is some replumbing that goes on down there after a procedure of that nature, and right now we're not quite sure how that replumbing is going to go -- the doctors can't say what they'll do until the procedure is underway and they can get a better look. Dad was referred to the Cleveland Clinic, well known for its treatment of cancer.
After the procedure, the doctors tell us Dad will have to spend about a week in the hospital recovery. Then, he'll be released, but stay in Cleveland for some follow up. There is a likelihood that he will have to have some follow-up Chemo when he returns to Greenville...but for now, we're told that he probably won't have to have any radiation, which is great news!
The people at the Cleveland Clinic have been really good. Dad especially liked the nurse who, after a procedure to get his kidney function doing a little better earlier last week, told him that gin absolutely counts as one of the clear liquids he needed to drink. The surgeon, Dr. Furgoni, is an excellent doctor with an amazing reputation...and he has been able to keep everbody at ease.
As a family, we can't thank you enough for all your concern, calls, and prayers. We're really lucky to have so many caring and supportive people in our lives.
Please feel free to leave a comment below.
I will post updates here as we get them and as I'm able. Thanks again. With love -- The Gladfelters
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